Dates have recently been announced for the 9th Annual Symposium. This year the Symposium takes place on Monday October 17th at the Crowne Plaza in Valley Forge. For more details about the event you can contact The Children’s Hospital of Philadelphia Continuing Education Department.
29th February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries all over the world will hold awareness-raising activities. Friedreich’s Ataxia is a rare disease and we at the Sam McMahon Trust will be marking the day.
Wheelchairs don’t last forever, brakes and handles get worn out and break, seats get worn and fail to provide adequate support. So you request a review with the care providers who look after your needs. You do that in January and you wait until an appointment is made for you on July 15th. Those who […]
Our Open Garden Event will take place on Saturday June 6th from 10am to 4pm this year.The garden can be found at 40 Templeroan Avenue in Knocklyon. We are looking forward to catching up with old friends and meeting new ones. As usual tea, coffee and treats will be served and we will have a selection […]