There are numerous parenting books available for parents offering advice on how to best care for their children. However parenting a child with a chronic illness poses additional challenges and the need for greater support. The demands of everyday day life are complicated and pushed to the extreme with the added pressure of medical appointments, treatments and procedures.
In Extreme Parenting, author Sharon Dempsey, writing from her own experience with her son Owen who was ill for several years and eventually died at home, gives an insight into the world of chronic illness and the effect on parents, siblings and extended family members. She defines chronic illness as treateable or manageable but not curable. She acknowledges the importance of the parents ability to cope and the impact of their care giving on the wellbeing of the child.
Extreme Parenting does not represent the experience of parents who have children with Friedreich’s Ataxia but offers advice and reassurance. Dempsey emphasises the need for good and effective channels of communication. She provides practical advice on issues such as coping with hospitals and treatments, advocacy, communicating with health care professionals and tips for family life.
A difficult but rewarding and inspiring read.