This year Rare Disease Day will take place on February 29th. The aim of the day is to raise awareness about rare diseases. The focus of the campaign this year is Solidarity.
80% of rare diseases are genetic in origin and 50% affect children. In most cases there are no cures. Friedreich’s Ataxia is classified as a rare disease. We would like to join our voice with others who have rare diseases in the hope that those who have rare, incurable diseases will receive more support, understanding and care.
If you would like more information about Rare Disease Day or you would like to tell your story, click here.