Dates have recently been announced for the 9th Annual Symposium. This year the Symposium takes place on Monday October 17th at the Crowne Plaza in Valley Forge. For more details about the event you can contact The Children’s Hospital of Philadelphia Continuing Education Department.
We had our annual Open Garden on June 25th this year. After a rainy week the sun came out and we had a great day. We were busy from ten until after four. Our friends and family worked and supported us on what was a hectic day. As always we are overwhelmed by the support […]
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29th February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries all over the world will hold awareness-raising activities. Friedreich’s Ataxia is a rare disease and we at the Sam McMahon Trust will be marking the day.
Wheelchairs don’t last forever, brakes and handles get worn out and break, seats get worn and fail to provide adequate support. So you request a review with the care providers who look after your needs. You do that in January and you wait until an appointment is made for you on July 15th. Those who […]
Thank you to everyone who made the Open Garden such a great success again this year. We enjoyed the day immensely and hope that you did too!
Our Open Garden Event will take place on Saturday June 6th from 10am to 4pm this year.The garden can be found at 40 Templeroan Avenue in Knocklyon. We are looking forward to catching up with old friends and meeting new ones. As usual tea, coffee and treats will be served and we will have a selection […]
The 7th Annual Friedreich’s Ataxia Symposium will take place in Phildaelphia on October 12th and 13th. More details to follow.
Our Open Garden event will take place on Saturday June 14th this year. The garden will be open, rain or shine, from 10 am until 4 pm. As always there will be tea, coffee and a selection of fabulous cakes and treats. We are looking forward to catching up with old friends and welcoming new […]
Rare Disease Day takes places on February 28th this year. Events will be held around the world to raise awareness about rare diseases. The theme for 2014 is ‘care’.
As Christmas draws closer and the final days of 2013 are upon us we look back at the past year. As with all other years there are high and lows. Our fundraising endeavours have been nothing short of amazing. To date Sam’s Trust has raised $24,000 for FARA in the United States. As always the […]