We came across an interesting article called Permission to Fail…and Succeed by Kathie Snow. Kathie’s website called Disability is Natural challenges and encourages people to think about disability in a new way. She believes that where we change our attitudes and action we can create a society where all adults and children, including those with […]
In order to explain some of the symptoms of Friedreich’s Ataxia (FA) to his classmates and to help create awareness and understanding of his condition, Sam with some help from his mum Caroline, and Aunt Sandra, gave a presentation to his classmates. The details included are age appropriate and relevant to Sam. It is hoped […]
Ataxia awareness day is held on 25 September every year. Ataxia is a rare progressive disorder of the nervous system that affects balance, coordination and speech. As the condition progresses sight, hearing and the heart can be affected. Ataxia can strike at any time regardless of age, gender or race. There is no treatment or […]