FA Parents’ Group launch new Website
In 1997 a group of parents who have children with Friedreich’s Ataxia began to email each other to share experiences, ideas and information. Since then the group has grown and stretched across continents and time zones. All parents with concerns, worries and insights into FA. The group allows parents the chance to ‘think out loud’, to receive advice and help, even though physically they are miles apart.
The FAPG website has been revamped and developed. It offers parents a new forum to share their experiences and knowledge. Information about FA, details of forthcoming fundraising events and photos of our children and families are included. One you register with FAPG you can include other information and photos. Click here to see the new site.