Dates have recently been announced for the 9th Annual Symposium. This year the Symposium takes place on Monday October 17th at the Crowne Plaza in Valley Forge. For more details about the event you can contact The Children’s Hospital of Philadelphia Continuing Education Department.
Posts in category Friedreich’s Ataxia Symposium
Friedreich’s Ataxia Symposium
The details for the 6th annual Friedreich’s Ataxia Symposium have been announced. As before the location is Crowne Plaza Valley Forge Hotel at King of Prussia in Philadelphia. There is a ‘Meet & Greet’ on Sunday October 13th and the Symposium takes place on Monday October 14th. For details of the programme or to download […]
5th Annual FA Symposium Presentations
We were lucky to attend the Fifth Annual Friedreich’s Ataxia Symposium in early October. There were presentations on clinical updates, interesting updates on research and clinical trials and personal experiences in relation to accessible travel. If you would like to see the presentations they are now available online, click here to see them.
5th Annual Friedreich’s Ataxia ...
The 5th Annual Friedreich’s Ataxia Symposium, organised by the Children’s Hospital of Philadelphia and FARA Monday took place on October 8th at the Crowne Valley Forge Hotel in Philadelphia. The day began with presentations from Dr David Lynch (CHOP), Dr Giovanni Manfredi (Scientific Advisor FARA) and Dr Robert Wilson (FARA). Lisa Friedman presented her findings […]
2012 Friedreich’s Ataxia Sympos...
Details of the 2012 Friedreich’s Ataxia Symposium have just been announced. As last year, the symposium will be held in the Valley Forge Crowne Plaza at King of Prussia in Philadelphia, on October 7th and 8th. There will be clinical updates on Cardiology, Neurology and Physical Therapy, as well as information on Gene Therapy and HDAC […]
Friedreich’s Ataxia Symposium 2...
Details about the 4th Friedreich’s Ataxia Symposium have just been released. The conference will take place on Saturday October 8th at the Crowne Plaza Valley Forge located in King of Prussia PA. Presentations will include information about Neurological Features of FA, Diabetes, Biochemical Mechanisms and Therapeutic Pathways. There will also be presentations on current research […]
Friedreich’s Ataxia Symposium 2...
The third annual Friedreich’s Ataxia Symposium took place last weekend in Philadelphia. With approximately 250 in attendence this was the largest gathering to date. The Meet and Greet session on Friday evening gave people the chance to get together and to discuss their thoughts and experiences. Kyle Bryant and his Race Across America team mates […]
Friedreich’s Ataxia Symposium 2...
The final details and programme for the 3rd annual Friedreich’s Ataxia Symposium, sponsored by the Children’s Hospital of Philadelphia, have been released. Pre -registration is required and the registration deadline is October 22nd. There will be presentations on pathophysiology and therapeutic pathways, clinical trial updates, the heart in FA patients, diabetes and the keynote lecture […]
Friedreich’s Ataxia Symposium 2...
The 3rd annual Friedeich’s Ataxia Synposium has been confirmed for Saturday 13th November at the Philadelphia Marriott at the heart of the city. There will be updates on clinical research and trials, information on diabetes, cardiology and neurology and the keynote speaker will be Richard Cohen author of Strong at the Broken Places. This symposium […]