The 5th Annual Friedreich’s Ataxia Symposium, organised by the Children’s Hospital of Philadelphia and FARA Monday took place on October 8th at the Crowne Valley Forge Hotel in Philadelphia. The day began with presentations from Dr David Lynch (CHOP), Dr Giovanni Manfredi (Scientific Advisor FARA) and Dr Robert Wilson (FARA). Lisa Friedman presented her findings […]
Categories
- A0001 (1)
- Antioxidants (3)
- Ataxia UK (1)
- B3 (1)
- Books (4)
- Cardiac issues (5)
- Cardiomyopathy (1)
- Christmas Cards (4)
- Clinical Trials (3)
- Clothes for disabled (1)
- Coq10 (1)
- Dublin Marathon (1)
- Education (3)
- Educational Guidelines (2)
- EPI-743 (1)
- Euro-Ataxia (2)
- EUROPLAN (1)
- Exercise (6)
- FARA (5)
- Friedreich's Ataxia Awareness Day (2)
- Friedreich's Ataxia Parents' Group (1)
- Friedreich's Ataxia Symposium (15)
- Frustration (2)
- Fundraising (22)
- Fundraising for FARA (1)
- Gene Therapy (1)
- GP Guidelines (1)
- HDAC Inhibitors (1)
- Idebenone (2)
- Inspirational Ideas (1)
- International Ataxia Awareness Day (4)
- Irish Wheelchair Association (1)
- Just Sam… (5)
- King of Greystones Triathlon (5)
- Maintaining good health (3)
- Mums' Lunch (2)
- Muscular Dystrophy Association (MDA) (1)
- National Ataxia Foundation (5)
- New Year (1)
- News (66)
- Nutrition (1)
- Open Garden (8)
- Parenting (1)
- Philadelphia (2)
- physiotherapy (3)
- Planning for the Future (1)
- Raising awareness (5)
- Rare Disease Day (5)
- Research (3)
- Ride Ataxia (9)
- Scientific Research Symposium (1)
- Seasonal flu Vaccination (1)
- Shop (1)
- Stem Cells (iPS cells) (1)
- Sulforaphane (1)
- Therapeutic Horse Riding (1)
- Treatments (3)
- Uncategorized (12)
- Visiting Philadelphia (2)
- Wijits (1)
- Women's Mini Marathon (3)
- Wordles (2)
- Working to find a cure (4)
- Yearly Clinical Recommendations (1)