Website and Blog for the Sam McMahon Trust
September 25th is International Ataxia Awareness Day.
We would like to take this opportunity to thank all of those who work tirelessly to raise awareness about FA.
To the specialists, scientists and researchers who have dedicated their efforts to finding a cure, we think you are GREAT!
September 25th is International Ataxia Awareness Day. The goal of the day is to create awareness about ataxia. The Sam McMahon Trust team continue to work at raising awareness about and understanding of Friedreich’s Ataxia.
We are currently working on a number of new ideas to help to further raise awareness. So keep an eye on the site for more details….
Ataxia awareness day is held on 25 September every year. Ataxia is a rare progressive disorder of the nervous system that affects balance, coordination and speech. As the condition progresses sight, hearing and the heart can be affected. Ataxia can strike at any time regardless of age, gender or race. There is no treatment or cure for ataxia.
The aim of the day is to raise awareness about ataxia. Can you participate in an activity that creates awareness? Can you share your experience with others who have not heard about ataxia? Can you raise financial support? Can you help others to have a better understanding of ataxia?
Are you doing something to mark International Awareness Day? We would love to hear about your ideas and plans. Contact us and let us know.