Until recently Neuro-Rehabiliation Services in Ireland were provided in an ad-hoc fashion and services seem to vary in different parts of the country. It is very difficult to establish what services are available for children and adults with Friedreich’s Ataxia.This may be partly due to the rarity of the condition but is also as a […]
Over the past number of months several people have approached us asking about the services that are provided for Sam. That got us thinking. After consulting with other families it seems that the physical therapy services for people with Friedreich’s Ataxia in Ireland are random and somewhat haphazard. Some people have regular physiotherapy, others have […]
A recent study by Ilg et al examined the effectiveness of a 4-week intensive coordinative training for 16 patients with progressive ataxia (4 participants had Friedreich’s Ataxia). Significant improvements in motor performance and a reduction of ataxia symptoms were observed in clinical scores after training and were sustained at follow-up assessment. The study concludes that […]