This year the King of Greystones Triathlon takes place on Saturday August 7th. With a 750m swim, 20km cycle and 5k run you need to need to be reasonably fit to compete. But you don’t need to have any special training to help out. We need helpers to direct competitors and give out water from […]
Yesterday June 12th we held our 2nd Open Garden event. With the first visitors arriving at 9.50 in the morning and the last drifting off around 5.30 we were delighted but exhausted after such a great day. Although the weather has been unpredictable over the past few days, yesterday was different. The sun shone most […]
October 25th saw the first Ride Ataxia event in Philadelphia. With 350 riders over $100,000 was raised for research. Founded by the inspirational Kyle Bryant (who suffers from Friedreich’s Ataxia), the Ride Ataxia team has been raising awareness and much needed money for research since 2007. This event raised approximately $55,000 online and the Northeast […]
In order to explain some of the symptoms of Friedreich’s Ataxia (FA) to his classmates and to help create awareness and understanding of his condition, Sam with some help from his mum Caroline, and Aunt Sandra, gave a presentation to his classmates. The details included are age appropriate and relevant to Sam. It is hoped […]
A Wordle is a toy for generating “word clouds” from text that you provide. Wordles are created by Jonathan Feinberg’s online tool here. In this Wordle we have tried to use several terms associated with Friedreich’s Ataxia. We hope that this will help to educate and raise awareness.