Website and Blog for the Sam McMahon Trust

Archive for the ‘Raising awareness’ Category

King of Greystones Triathlon 2010

This year the King of Greystones Triathlon takes place on Saturday August 7th.  With a 750m swim, 20km cycle and 5k run you need to need to be reasonably fit to compete. But you don’t  need to have any special training to help out. We need helpers to direct competitors and give out water from 9am til lunch time.

You will receive a King of Greystones T-shirt, a goodie bag, free BBQ and entry to the Koo that evening .

If you can help us out then please contact: Aisling  (Aisling@yourleadbuddy.com) or Shane (Shane_McKenna@dell.com)

As The Sam McMahon Trust will benefit from this year’s event we will be out in force to support the Triathlon. Will we see you there?

2010 Open Garden

06.13.2010 · Posted in Fundraising, News, Open Garden, Raising awareness

Yesterday June 12th we held our 2nd Open Garden event. With the first visitors arriving at 9.50 in the morning and the last drifting off around 5.30 we were delighted but exhausted after such a great day. Although the weather has been unpredictable over the past few days, yesterday was different. The sun shone most of the time and at one stage someone said that it was a bit too hot!

Thanks to the team of workers who were kept busy for the whole day and thanks are due to all of the kind people who baked delicious cakes, buns and goodies for us. And thanks to you for coming, for taking time out of your weekend to support the event.

Ride Ataxia Philadelphia

11.04.2009 · Posted in News, Raising awareness, Ride Ataxia

Ride Ataxia October 25th '09

October 25th saw the first Ride Ataxia event in Philadelphia. With 350 riders over $100,000 was raised for research. Founded by the inspirational Kyle Bryant (who suffers from Friedreich’s Ataxia), the Ride Ataxia team has been raising awareness and much needed money for research since 2007.

This event raised approximately $55,000 online and the Northeast Philadelphia area Outback restaurants raised $41,000. The $100,000 mark was surpassed with the generous support of sponsors such as Outback Steakhouse, Carrabba’s Italian Grill, Bonefish Grill, Hank’s Beverages, Allied Beverage, G&R Mechanical, F&F Mechanical, Faraco Knife and Slicer Co., Santhera Pharmaceuticals, Miller Coors, Heineken, and Dr. Holly Hedrick.

The day started at 7.30a.m with registration where everybody was able to gather and meet before the ride started. The 50 mile riders started at about 8.45a.m and encountered a tough course. The first riders came in at about 11a.m. While the riders were out on the course there were plenty of activities back at the park. The kids enjoyed a bike loop around the park, crafts, face painting, and hay rides by horse drawn buggy.

It’s clear that the ride had a little something for everyone. The course was challenging even for the experienced riders but there were shorter options which helped get everyone involved.

In the end this ride had huge participation from many people who had never heard of FA before and a huge amount of money was raised. Awareness and fundraising are the key ingredients to finding a cure for this rare disease. Well done to all who took part. We wish we could have been part of the event.

Telling 3rd Class about Friedreich’s Ataxia.

10.21.2009 · Posted in Education, Raising awareness

In order to explain some of the symptoms of Friedreich’s Ataxia (FA) to his classmates and to help create awareness and understanding of his condition, Sam with some help from his mum Caroline, and Aunt Sandra, gave a presentation to his classmates. The details included are age appropriate and relevant to Sam. It is hoped that this information will help Sam and his friends to deal with the impact that FA has on Sam. See the presentation here.