29th February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries all over the world will hold awareness-raising activities. Friedreich’s Ataxia is a rare disease and we at the Sam McMahon Trust will be marking the day.
Posts in category Rare Disease Day
This year Rare Disease Day will take place on February 29th. The aim of the day is to raise awareness about rare diseases. The focus of the campaign this year is Solidarity. 80% of rare diseases are genetic in origin and 50% affect children. In most cases there are no cures. Friedreich’s Ataxia is classified […]
The National Organisation for Rare Diseases (NORD) and others around the world will observe Rare Disease Day on February 28th. Millions of patients and their families will share their stories and experiences to raise awareness about rare diseases. In Ireland, Rare Disease Day will be marked by a public meeting, Patients and Researchers: Partners for […]
February 28th 2010 marks Rare Disease Day in Ireland. The main objective of the day is to raise awareness with policy makers and the public of rare diseases and the impact that they have on patients’ lives.The Genetic and Rare Disorders Organisation are celebrating this day in the Mansion House in Dublin from 11am to […]