Details of the 2012 Friedreich’s Ataxia Symposium have just been announced. As last year, the symposium will be held in the Valley Forge Crowne Plaza at King of Prussia in Philadelphia, on October 7th and 8th. There will be clinical updates on Cardiology, Neurology and Physical Therapy, as well as information on Gene Therapy and HDAC […]
The second Ride Ataxia Philadelphia event takes place today. With 10, 25 and 50 mile routes through scenic country roads there will be something for every level of fitness. That said the 50 mile route involves 3,000 feet of climbing and is suitable for experienced riders only! Lunch, sponsored by Outback Steakhouse, Bonefish Grill and […]
Since Saturday 4 brave men and a road crew of 13 people have been making their way across America in what is regarded as ‘the world’s toughest bike race’. What is more shocking is that two of the riders have FA! They want to raise awareness about Friedreich’s Ataxia and I for one am mesmerised […]
Another date has been added to the ‘Ride Ataxia’ calander for 2010. The Philadelphia event will take place on Sunday October 10th. Further details will be made available in the coming weeks. At the Symposium last November there were hopes that the 2010 Symposium would take place at the same weekend. Nothing has been confirmed […]
Congratulations to all of those who were involved in the Ride Ataxia Tampa Bay on April 13th. With 75 riders and over $30,000 raised, the event was a great success. Kyle Bryant, the man behind Ride Ataxia was there to participate and inspire. Thanks Kyle! Check out Marc Dahl’s short film of the event here.
We wish we could be part of the Ride Ataxia events that are taking place across America this year, particularly the ‘Race Across America’ event. The Ride Ataxia Tampa Bay takes place on April 13th and the North California Ride will happen on May 15th and 16th. With all of the miles between us all […]
The Friedreich’s Ataxia Research Alliance (FARA) is fielding a team of four cyclists in the “world’s toughest bicycle race”. The annual transcontinental bicycle Race Across America (RAAM) begins on June 12 2010 in Oceanside, California and finishes in Annapolis, Maryland approximately 9 days later. This race from the west to east coast of the USA […]
October 25th saw the first Ride Ataxia event in Philadelphia. With 350 riders over $100,000 was raised for research. Founded by the inspirational Kyle Bryant (who suffers from Friedreich’s Ataxia), the Ride Ataxia team has been raising awareness and much needed money for research since 2007. This event raised approximately $55,000 online and the Northeast […]
The first Ride Ataxia event on the East Coast of the USA takes place in Philadelphia on October 25th 2009. Activities include 10, 25 and 50 mile routes on scenic country roads. Founded by Kyle Bryant, who suffers from Friedreich’s Ataxia, the Ride Ataxia team has travelled 3300 miles over the past three years. They […]