Our Open Garden will be held on June 29th and 30th this year. As usual we are looking forward to a fun weekend of flowers, plants and sunshine. Our yummy cakes, buns, scones and treats will be there to tempt and delight you.
Posts in category Uncategorized
Channel Swim
We were delighted to hear that Cormac McKenna, a good friend of the Sam McMahon Trust, is preparing to swim the English Channel in August this year. He is a talented swimmer who has taken part in several competitive swims over the past few years. However this Channel Swim is his greatest challenge to date. […]
Christmas Cards – Thank You
As Christmas is almost upon us we would like to thank all of those people who have supported FARA Ireland by buying Christmas cards through Sam’s site. All of the proceeds go towards research into Friedreich’s Ataxia and with the inevitable passing of time, we at the Sam McMahon Trust know only too well that […]
International Ataxia Awareness Day 20...
September 25th marks International Ataxia Awareness Day. It is heartening that so much research is going on around the world to find treatments and a cure for the different ataxias. Over the past few days we have been working with FARA Ireland on the Christmas Cards for 2012. The designs have been selected and the […]
Thank You!
This year we decided to hold the Open Garden over two days on June 9th and 10th. After a week of terrible weather and incessant rain there was some doubt as to whether we would have any visitors to the garden. Thankfully the rain clouds cleared on Friday night and although Saturday morning began somewhat […]
Rare Disease Day 2012
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This year Rare Disease Day will take place on February 29th. The aim of the day is to raise awareness about rare diseases. The focus of the campaign this year is Solidarity. 80% of rare diseases are genetic in origin and 50% affect children. In most cases there are no cures. Friedreich’s Ataxia is classified […]
International Ataxia Day 2011
September 25th is International Ataxia Awareness Day. We would like to take this opportunity to thank all of those who work tirelessly to raise awareness about FA. To the specialists, scientists and researchers who have dedicated their efforts to finding a cure, we think you are GREAT!
Friedreich’s Ataxia Symposium 2...
Details about the 4th Friedreich’s Ataxia Symposium have just been released. The conference will take place on Saturday October 8th at the Crowne Plaza Valley Forge located in King of Prussia PA. Presentations will include information about Neurological Features of FA, Diabetes, Biochemical Mechanisms and Therapeutic Pathways. There will also be presentations on current research […]
Tips for visiting Philadelphia
A number of people have contacted us recently to ask us about visiting Philadelphia. Preparing to visit a doctor can be stressful but having to book airline tickets and find the right hotel, we that’s another story. We are not experts but we have made the trip on several occasions now. So here is what […]
Mums’ Lunch 2011
At the start of the year we resolved to organise a lunch for Mums who have kids with FA. Well we are true to our word! We will meet on June 18th at the D4 Berkeley on Landsdowne Road between 1.30/2pm. If you would like to come along please contact us at sammcmahontrust@ireland.com. We are […]