Comments on: Contact Us http://www.sammcmahontrust.ie Website and Blog for the Sam McMahon Trust Wed, 23 Nov 2011 21:23:58 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: caroline http://www.sammcmahontrust.ie/contact-us/comment-page-1/#comment-241 caroline Mon, 23 Aug 2010 17:22:44 +0000 http://www.sammcmahontrust.ie/?page_id=17#comment-241 Hi Rosana, it's good to hear from you. The best symposium (in our opinion) is the one that's organised by the Children's Hospital in Philadelphia. It's due to take place on November 14th this year and registration is open at present. There's further information on our site if you want more details. For support you should encourage your sister to register with FAPG (the Friedreich's Ataxia Parents Group). We communicate by email. This is their address: http://www.faparents.org/fapg/ Take care, Caroline Hi Rosana, it’s good to hear from you. The best symposium (in our opinion) is the one that’s organised by the Children’s Hospital in Philadelphia. It’s due to take place on November 14th this year and registration is open at present. There’s further information on our site if you want more details.

For support you should encourage your sister to register with FAPG (the Friedreich’s Ataxia Parents Group). We communicate by email. This is their address: http://www.faparents.org/fapg/

Take care,
Caroline

]]> By: Rosana http://www.sammcmahontrust.ie/contact-us/comment-page-1/#comment-240 Rosana Sun, 22 Aug 2010 19:11:33 +0000 http://www.sammcmahontrust.ie/?page_id=17#comment-240 Hi Sam, I found this site on google as well and my newphew (20 yrs old) has been diagnosed with FA this year. As his aunt I am reading up on FA as much as possible. I live in the Boston area and wondered if you had a symposium on FA in Boston,Ma? My newphew lives in Fla and I know through my sister there is one happening at the end of August in Tampa,Fla. As well as a support group? Thank you... Rosana Hi Sam, I found this site on google as well and my newphew (20 yrs old) has been diagnosed with FA this year. As his aunt I am reading up on FA as much as possible. I live in the Boston area and wondered if you had a symposium on FA in Boston,Ma? My newphew lives in Fla and I know through my sister there is one happening at the end of August in Tampa,Fla. As well as a support group? Thank you… Rosana

]]> By: caroline http://www.sammcmahontrust.ie/contact-us/comment-page-1/#comment-113 caroline Sat, 20 Mar 2010 19:00:07 +0000 http://www.sammcmahontrust.ie/?page_id=17#comment-113 Tom and Caroline, it's good to hear from you. We agree FARA are superb! They offer great hope and support for FA families. Great to hear from you! Caroline Tom and Caroline, it’s good to hear from you. We agree FARA are superb! They offer great hope and support for FA families. Great to hear from you! Caroline

]]> By: Tom and Caroline Hopkins http://www.sammcmahontrust.ie/contact-us/comment-page-1/#comment-112 Tom and Caroline Hopkins Sat, 20 Mar 2010 16:29:17 +0000 http://www.sammcmahontrust.ie/?page_id=17#comment-112 Hi Sam and McMahon Family Found your site on Google. Our daughter, Grace (14), was diagnosed with FA in September 2008. We have learned a lot since then - especially through the good folks at FARA. We always keep our FA family in our thoughts and prayers. Much good work is being done. All our best. Tom and Caroline Hopkins Quinebaug, Ct. Hi Sam and McMahon Family

Found your site on Google. Our daughter, Grace (14), was diagnosed with FA in September 2008. We have learned a lot since then – especially through the good folks at FARA. We always keep our FA family in our thoughts and prayers. Much good work is being done. All our best.

Tom and Caroline Hopkins
Quinebaug, Ct.

]]> By: caroline http://www.sammcmahontrust.ie/contact-us/comment-page-1/#comment-84 caroline Thu, 11 Mar 2010 20:35:06 +0000 http://www.sammcmahontrust.ie/?page_id=17#comment-84 Glad you enjoyed it Barry. 'Contact Us' details now include link to Facebook. We're not Twittering yet though! Caroline Glad you enjoyed it Barry. ‘Contact Us’ details now include link to Facebook. We’re not Twittering yet though! Caroline

]]> By: Barry Alistair http://www.sammcmahontrust.ie/contact-us/comment-page-1/#comment-82 Barry Alistair Tue, 09 Mar 2010 09:12:36 +0000 http://www.sammcmahontrust.ie/?page_id=17#comment-82 Well done last night....but Twitter and Facebook guys? Well done last night….but Twitter and Facebook guys?

]]> By: caroline http://www.sammcmahontrust.ie/contact-us/comment-page-1/#comment-51 caroline Thu, 11 Feb 2010 16:37:10 +0000 http://www.sammcmahontrust.ie/?page_id=17#comment-51 Hi Catherine, I have emailed you regarding the blog for Rare Disease Day. Caroline Hi Catherine, I have emailed you regarding the blog for Rare Disease Day. Caroline

]]> By: Catherine Calhoun http://www.sammcmahontrust.ie/contact-us/comment-page-1/#comment-49 Catherine Calhoun Sat, 06 Feb 2010 23:53:26 +0000 http://www.sammcmahontrust.ie/?page_id=17#comment-49 Would you be interested in blogging something for rare disease day (Feb. 28) -- I would like to collect as many posts as possible for rare disease day into one post with links on the Children's Rare Disease Network blog, SNiPs. Email me if you would like to participate. Catherine Would you be interested in blogging something for rare disease day (Feb. 28) — I would like to collect as many posts as possible for rare disease day into one post with links on the Children’s Rare Disease Network blog, SNiPs. Email me if you would like to participate.

Catherine

]]>