A number of people have contacted us recently to ask us about visiting Philadelphia. Preparing to visit a doctor can be stressful but having to book airline tickets and find the right hotel, we that’s another story. We are not experts but we have made the trip on several occasions now. So here is what […]
Categories
- A0001 (1)
- Antioxidants (3)
- Ataxia UK (1)
- B3 (1)
- Books (4)
- Cardiac issues (5)
- Cardiomyopathy (1)
- Christmas Cards (4)
- Clinical Trials (3)
- Clothes for disabled (1)
- Coq10 (1)
- Dublin Marathon (1)
- Education (3)
- Educational Guidelines (2)
- EPI-743 (1)
- Euro-Ataxia (2)
- EUROPLAN (1)
- Exercise (6)
- FARA (5)
- Friedreich's Ataxia Awareness Day (2)
- Friedreich's Ataxia Parents' Group (1)
- Friedreich's Ataxia Symposium (15)
- Frustration (2)
- Fundraising (22)
- Fundraising for FARA (1)
- Gene Therapy (1)
- GP Guidelines (1)
- HDAC Inhibitors (1)
- Idebenone (2)
- Inspirational Ideas (1)
- International Ataxia Awareness Day (4)
- Irish Wheelchair Association (1)
- Just Sam… (5)
- King of Greystones Triathlon (5)
- Maintaining good health (3)
- Mums' Lunch (2)
- Muscular Dystrophy Association (MDA) (1)
- National Ataxia Foundation (5)
- New Year (1)
- News (66)
- Nutrition (1)
- Open Garden (8)
- Parenting (1)
- Philadelphia (2)
- physiotherapy (3)
- Planning for the Future (1)
- Raising awareness (5)
- Rare Disease Day (5)
- Research (3)
- Ride Ataxia (9)
- Scientific Research Symposium (1)
- Seasonal flu Vaccination (1)
- Shop (1)
- Stem Cells (iPS cells) (1)
- Sulforaphane (1)
- Therapeutic Horse Riding (1)
- Treatments (3)
- Uncategorized (12)
- Visiting Philadelphia (2)
- Wijits (1)
- Women's Mini Marathon (3)
- Wordles (2)
- Working to find a cure (4)
- Yearly Clinical Recommendations (1)