Sam McMahon Trust » Rare disease http://www.sammcmahontrust.ie Website and Blog for the Sam McMahon Trust Mon, 02 Jan 2012 16:12:11 +0000 en hourly 1 http://wordpress.org/?v=3.0.1 Rare Disease Day http://www.sammcmahontrust.ie/2010/02/03/rare-disease-day/ http://www.sammcmahontrust.ie/2010/02/03/rare-disease-day/#comments Wed, 03 Feb 2010 22:09:36 +0000 caroline http://www.sammcmahontrust.ie/?p=563 Rare Disease DayFebruary 28th 2010 marks Rare Disease Day in Ireland. The main objective of the day is to raise awareness with policy makers and the public of rare diseases and the impact that they have on patients’ lives.The Genetic and Rare Disorders Organisation are celebrating this day in the Mansion House in Dublin from 11am to 1pm. Families and those interested in hearing about the supports available to those who have rare diseases in Ireland are welcome, and  children who come along with parents, will be able to attend music workshops and have face-painting done.

There will be over 20 organisations present to provide  information on support and incentives that are underway on the national and international stage. The event will be hosted by the Lord Mayor of Dublin Councillor Eibhlin Byrne.

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