Comments on: Useful Information http://www.sammcmahontrust.ie Website and Blog for the Sam McMahon Trust Wed, 23 Nov 2011 21:23:58 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: caroline http://www.sammcmahontrust.ie/useful-informationl/comment-page-1/#comment-81 caroline Wed, 03 Mar 2010 22:08:25 +0000 http://www.sammcmahontrust.ie/?page_id=13#comment-81 It's good to hear from you Lisa. We are relatively new to the world of FA but we are doing all that we can to learn about the condition and all of the research that is going on. We have travelled to Philadelphia to the FA symposium on two occasions and found it very useful. It's good to meet with other parents and see what they're doing. Any useful information we come across we will post on the site, so keep in touch! Caroline It’s good to hear from you Lisa. We are relatively new to the world of FA but we are doing all that we can to learn about the condition and all of the research that is going on. We have travelled to Philadelphia to the FA symposium on two occasions and found it very useful. It’s good to meet with other parents and see what they’re doing. Any useful information we come across we will post on the site, so keep in touch! Caroline

]]> By: Lisa Miner http://www.sammcmahontrust.ie/useful-informationl/comment-page-1/#comment-80 Lisa Miner Tue, 02 Mar 2010 19:21:22 +0000 http://www.sammcmahontrust.ie/?page_id=13#comment-80 We have been trying to do this same thing for Kody, our son who was diagnosed 7/27/2003. Any advice you could offer would be much appreciated. We have a few sites involving him: www.caringbridge.org/visit/kodychampagne www.fortheloveofkody.blogspot.com http://www.facebook.com/#!/group.php?gid=313480655616 ( a group on FB for Kody) Thanks for any help you can offer us. I am trying to make head way and not doing very much on our own. We have been trying to do this same thing for Kody, our son who was diagnosed 7/27/2003. Any advice you could offer would be much appreciated. We have a few sites involving him:

http://www.caringbridge.org/visit/kodychampagne

http://www.fortheloveofkody.blogspot.com

http://www.facebook.com/#!/group.php?gid=313480655616 ( a group on FB for Kody)

Thanks for any help you can offer us. I am trying to make head way and not doing very much on our own.

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